News & Events

Upcoming Events

June 21-24, 2023

PWSA | USA 2023 National Convention

They are back in-person! PWSA | USA would like to invite our community to attend PWSA | USA’s 37th National Convention.

PWSA | USA’s Convention will provide exciting opportunities to learn, connect (and reconnect), and hear about the latest PWS research. Taking place in Orlando, FL on June 21-24, 2023, this world-class event will include Medical & Scientific, Professional Providers, and Family Conferences, as well as the newly renamed “PWS Kids Camp” for infants through adults, and their siblings.

PWSA | USA is also honored to host and include all PWS stakeholders during our Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting, which is an FDA program.

Whether you have a loved one with PWS, are a professional provider, a physician, or scientist, the 2023 Convention has something for everyone.

Click here for more information.

October 6 & 7, 2023

FPWR 2023 Family Conference

Location: The Westin Downtown Denver

The two-day conference is a powerful experience combining education, networking, and community-building. Learn the latest in PWS and SYS research and standards of care from experts in the field and have the opportunity to engage one-on-one with the researchers that have a deep interest in finding treatments for our loved ones with PWS and SYS.

Click here for more information.

Prader-Willi Syndrome children
man with pradi-willi syndrome child