Events

Upcoming Events

Saturday, August 3, 2024 • 11:00 AM – 3:00 PM

PWSAGA Educational Event

Location: Preston Ridge Community Center
3655 Preston Ridge Road Suite 100
Alpharetta, GA 30005

The Prader-Willi Syndrome Association of Georgia (PWSA-GA) is excited to announce the 2nd PWSA-GA Educational Seminar, a crucial event for our community. It will be held at the Preston Ridge Community Center in Alpharetta, GA, on Saturday, August 3rd from 11 am to 3:00 pm. We are honored to have 2 featured speakers, Patrice Carroll from Latham Centers and Elizabeth Roof from Vanderbilt, who will join us via zoom to discuss challenging behaviors in PWS.

Our chapter president, Lisa Matesevac, will provide a comprehensive overview of clinical trials, including the VNS4PWS study and the FPWR National Conference. This is a unique opportunity for us to stay informed and empowered. We will also receive an update on our advocacy efforts and any action items we need members to consider.

Like last year, the event will start with a picnic inside the air-conditioned facility, so everyone should bring a picnic lunch for themselves and their family members – water will be provided. Around noon, the adults/caretakers will transition to the meeting room for the presentations. Care will be provided for our loved ones with PWS (we will need a few volunteers like last time), and we will have crafts/games for them to enjoy in the activity room. We anticipate having access to the YMCA facilities next door after the meeting, so people may want to bring a bathing suit if they plan to swim.

We can’t wait to have this family time together to listen and learn from each other and to share the exciting things going on in the world of PWS nationally and in Georgia. We look forward to seeing you all at this dynamic event.

Those of you unable to attend in person will have access to the meeting presentations via Zoom. Look for more information about registration on our Facebook page.

Prader-Willi Syndrome children
man with pradi-willi syndrome child