Events

Hi everyone!

I have an exciting advocacy opportunity I would like to announce to the community. The Georgia Association for Prader-Willi syndrome has been invited to speak to the House Committee on Public and Community Health at the Georgia State Capitol. The meeting will take place on Tuesday, February 3, 2026, from 2 pm to 4 pm in the Paul Coverdale Building, room 606.

Immediately preceding the committee meeting, the Georgia Association for Prader-Willi Syndrome, in conjunction with PWSA USA and sponsored by Soleno Therapeutics, will host a pre-meeting luncheon in the State Capitol. The luncheon will take place in room 212 and will last from 1 pm to 2 pm. Boxed lunches will be provided to all who RSVP by Monday, January 26, 2026.

The purpose of the presentation at the committee meeting is to inform legislators, who are interested in and committed to public health issues, about all aspects of Prader-Willi Syndrome and the challenges we face as a community. We will be presenting a series of speakers, including a representative from Emory University, a representative from Soleno Therapeutics, 2 PWS parents, and 2 individuals living with PWS.

The public is invited to attend the committee meeting. I would like to ask each of you to consider making this a priority on your calendar. This committee meeting presents an opportunity to begin to develop relationships with key health informed legislators for the purpose of advocating for our loved ones.

In addition, all of the above mentioned committee members, as well as their support staff, will be invited to the pre-meeting luncheon. It will be important to have a strong community showing at this event. It could provide an opportunity for you, people who are directly impacted by PWS, to have one on one contact with these legislators.

As all of you know, access to state resources, waivers, and other related programs is difficult at best. If we are able to organize and effectively advocate for our community, we take a step closer to being able to ensure fair and equitable access to state support programs.

If you have any questions, feel free to contact me atkelly@guillou.biz.

Also, please see the following RSVP form for the luncheon.
https://www.surveymonkey.com/r/MQK9XLR

Thank you,

Kelly Guillou
Advocacy Chair
Georgia Association for Prader- Willi Syndrome